Aphasia Community Forums Introduce Yourself Alone in the Big Easy

  • Alone in the Big Easy

    Posted by Ruby Guillotte on August 3, 2023 at 1:56 pm

    Hello my name is Ruby and I live in New Orleans with my husband, though he has not been formally diagnosed with Aphasia he shows all the signs. It has been more noticeable within the last year and it is hard to say how long this has been going on. My MIL was the first to recognize the symptoms because her mother suffered with Dementia in the 60’s. At first, we thought it may have been brought on by a blow to the head but the doctor said that it may have only been a contributing factor. My husband believes he may have had a mild stroke but does not know for sure. My biggest concern is for my family and how this will affect all of us.

    Evelyn Tews replied 6 months, 2 weeks ago 3 Members · 7 Replies
  • 7 Replies
  • Allie Reed

    Member
    August 3, 2023 at 3:13 pm

    Hi Ruby! Welcome to the Community. I’m sorry to hear that your husband has been experiencing aphasia symptoms. My name is Allie Reed. I’m a SLP and work here at Lingraphica as Manager of our Virtual Connections program. We have many resources for care partners in The Aphasia Library on the Community. We have articles to help you learn more about aphasia, and how your family can help to support your husband. I would also recommend that you and your husband explore Virtualconnections.aphasia.com to meet others on the aphasia journey.

    Please let me know if there are any other resources that I can provide. -Allie

    • Ruby Guillotte

      Member
      August 9, 2023 at 11:35 am

      thanks for your reply and suggestions. I have already reached out to someone in the virtual connections and just waiting for a response.

  • Evelyn Tews

    Member
    August 3, 2023 at 4:33 pm

    Hi Ruby – this sounds frustrating for everyone involved. I have heard good things about caregiver support groups as a space to share ideas and connect with others. A quick Google search might pull up some options in the New Orleans area. I’m also a firm believer in balancing the hard work and time you put into being supportive of your husband with your own self-care – what are some activities that bring you joy?

    • Ruby Guillotte

      Member
      August 9, 2023 at 11:42 am

      thanks for your reply and I’ll have to look into the caregiver support groups online and possibly here in New Orleans. As for the the activities it’s crafting, necklaces and earrings and so on.

      • Evelyn Tews

        Member
        August 9, 2023 at 2:22 pm

        That sounds so fun and relaxing! I would love to learn how to make my own earrings. You may have inspired me to explore a new hobby! I used to cross stitch and found that very enjoyable.

        • Ruby Guillotte

          Member
          August 10, 2023 at 3:00 pm

          I used to cross stitch too only now with age the crosses are getting harder to see. I made so many of them that I began to give them away. One that I originally made for myself depicted two small girls trying on dresses one of which was a wedding dress so when my youngest niece got married I gave to her since she has always admired it since she was real young.

          • Evelyn Tews

            Member
            August 15, 2023 at 11:25 am

            Aww that is amazing – I’m sure she appreciated the sentiment and receiving a handmade gift! Wishing you a great week Ruby!

Log in to reply.