Aphasia Community Forums Introduce Yourself New here, but not new to aphasia

  • New here, but not new to aphasia

    Posted by Linda Hahn on September 10, 2023 at 4:49 pm

    Hi! My husband has Alzheimer’s and perhaps the hardest part to deal with at this point is his aphasia-he uses the word “thing”constantly and I rarely can figure out what he’s even talking about. The word comes up about 15 times in a conversation with no contextual clues. He also twirls his hands as if that might help me to understand. By the end of the day, I’m totally worn out and frustrated. My dad just died in February, 5 1/2 years after a debilitating stroke, which left him with frontal temporal dementia and severe aphasia.

    • This discussion was modified 8 months, 2 weeks ago by  Linda Hahn. Reason: I wanted to give more information
    Katherine Hamilton replied 7 months, 3 weeks ago 3 Members · 2 Replies
  • 2 Replies
  • Evelyn Tews

    Member
    September 14, 2023 at 3:26 pm

    Welcome Linda – I am sorry to hear about your dad’s passing and husband’s struggles. This is a safe space to share stories and meet others! We also have occasional caregiver sessions on our Virtual Connections platform – looks like the next one is coming up on Sept. 23rd. Here is the link if you’d like to take a look! https://virtualconnections.aphasia.com/events/

  • Katherine Hamilton

    Member
    September 27, 2023 at 11:02 am

    Hi Linda, I understand how hard that must be! Do you have any support at home? I agree that virtual connections is a great support network! My mom suffered from ALS and the loss of communication was so hard.

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